Hydrocephalus affects one in 500 Australian babies and many more children and adults acquire the condition as a result of accidents but there is little public awareness of the condition and not enough government funding for research.
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To raise awareness, Fairfax Regional Media is putting together a gallery of all the brave people suffering from this condition to give it a public face.
To be part, please send your photograph to kim.treasure@fairfaxmedia.com.au
To show your support for more government funding for research into hydrocephalus, please tweet, Facebook or Instagram using the hashtag #DoitforDarcy